fbpx
Select Page

New study triggers fears that people with autism may be ‘screened out’

A new study into autism is triggering fears that volunteers’ DNA will be used to create a test to ‘screen out’ autistic babies.

The study, led by a team of researchers at the University of Cambridge alongside colleagues from the Wellcome Sanger Institute and the University of California Los Angeles, has collected data from 10,000 participants with the stated aim to “investigate genetic and environmental factors that contribute to the wellbeing of autistic individuals and their families”.

However, individuals with autism as well as the National Autistic Society (NAS) have been highly critical of the study over fears that the research may lead to the development of tests to ‘screen out’ unborn babies found to be on the autistic spectrum.

In particular, critics have pointed out the dramatic decrease in the number of babies born with Down’s syndrome since the condition has been routinely tested for. The situation has worsened with the introduction of non-invasive prenatal testing over the past decade.

People with autism and their families are concerned

Autistic author and journalist, Laura James, said: “If you want to improve the lives of any group of people … the best way of going about that is asking them what would improve their quality of life, not asking for their DNA and not explaining what’s going to happen to it”.

“If somebody develops antenatal screening [for autism], for example, as they have with Down’s syndrome, then we could be in a situation like in Iceland, where barely anybody’s been born with Down’s [syndrome] for a number of years. Do we really want to write autistic people out of the world?”

Researchers have defended the study insisting that it “will not look for a cure for autism and does not aim to eradicate autism”.

Fergus Murray, 43, an Edinburgh-based science teacher and writer with autism is unconvinced: “It is hard to imagine how any research successfully identifying genetic markers for autism would not be put to such ends, as long as so many in our society see autism as inherently undesirable. Many people would, very reasonably, see that as a form of eugenics, despite parental enthusiasm [for antenatal screening]”.

Misuse of data a “totally valid fear”

The study’s lead, Professor Simon Baron-Cohen, has said that the misuse of this data was a “totally valid fear” but that “we’re looking for treatments, maybe cures, for specific symptoms that are causing suffering”.

“That’s a far cry from saying we’re looking for a cure for autism”, he said.

According to Professor Baron-Cohen, in just over one week, more than 4,000 people with autism or their families had signed up to take part in the study.

Baron-Cohen continued: “But we’re not just listening to them. Much more important is that we’re listening to the people who have raised concerns, listening to what the concerns are, seeing how we can address them and inviting people into a much wider consultation”.

The number of infants born with Down’s syndrome in the UK fell by 54% between 2011 and 2015, a period that saw the arrival of non-invasive prenatal testing (NIPT) to the UK in 2012.

Right To Life UK spokesperson, Catherine Robinson, said: “People with autism and their families are right to be concerned about how the data obtained through this research might be used. While the intentions of the researchers need not be in doubt, so long as autism continues to be viewed negatively, it is highly likely that at least some people will attempt to use this data for eugenic means”.

“As some critics have noted, the introduction of routine prenatal testing has been disastrous for people with Down’s syndrome who can legally be aborted at any point up to birth. People with autism are right to be wary of the same fate”.

Ask your local representatives to take the Both Lives Pledge

Dear reader, 

Last year, abortion campaigners brought forward an amendment to the UK Government’s flagship Police, Crime, Sentencing and Courts Bill that would have introduced abortion on demand, for any reason, up to birth (including sex-selective abortion).

Thanks to the support from people like you, this amendment did not go to a vote and pass, but we expect the abortion lobby to make another attempt to introduce this extreme abortion law change shortly.

This would be the single biggest change to abortion legislation since 1967 and would leave England and Wales with one of the most extreme abortion laws in the world.

Please sign the petition to Boris Johnson, asking him to ensure that his Government does everything in its power to stop the introduction of abortion up to birth.

Q

Be the first to know…

When you sign up for email updates from us, you will be receiving:

Action alerts on the latest pro-life developments along with tools to help you change hearts and minds

Opportunities to help protect and defend more lives

Where should we send your updates?

    By clicking submit, you agree that we may process your information in accordance with these terms below.

    Right To Life UK will use the information you provide on this form to keep in touch with you and to provide updates. You can change your mind at any time by clicking the unsubscribe link in the footer of any email you receive from us, or by contacting us at info@righttolife.org.uk. We will treat your information with respect. For more information about our privacy practices please see our Privacy Policy.

    Q

    Be the first to know…

    When you sign up for email updates from us, you will be receiving:

    Action alerts on the latest pro-life developments along with tools to help you change hearts and minds

    Opportunities to help protect and defend more lives

    Where should we send your updates?

      By clicking submit, you agree that we may process your information in accordance with these terms below.

      Right To Life UK will use the information you provide on this form to keep in touch with you and to provide updates. You can change your mind at any time by clicking the unsubscribe link in the footer of any email you receive from us, or by contacting us at info@righttolife.org.uk. We will treat your information with respect. For more information about our privacy practices please see our Privacy Policy.

      Ask your local representatives to take the Both Lives Pledge