Politicians fear the roll-out of prenatal tests for Down’s syndrome across England, Wales and Scotland will result in discriminatory abortions of babies with the condition.
In a debate, commemorating Down’s Syndrome Awareness Month, DUP MP Jim Shannon expressed concern that the number of babies born with Down’s syndrome has fallen by 30% in NHS hospitals that have introduced the new non-invasive prenatal tests.
Jim Shannon believes this is putting the UK on the path to the situation in other countries, where almost 100% babies diagnosed with Down’s syndrome are aborted, which is “chilling to the core”.
Outdated and negative views
Sharing in his trepidation, SNP MP Dr Lisa Cameron echoed the comments of Stacey Corrigan, whose six-year-old son, Daniel Murray, has Down’s syndrome.
Stacey had told the Daily Record that the current advice given to parents expecting a baby with Down’s syndrome is both “outdated” and “negative”.
“More often than not the termination is booked at that appointment with the parents are still in shock with the diagnosis,” she added.
The Scottish mother believes pregnant women deserve to be better informed and supported.
Dr Lisa Cameron said a “more comprehensive and accurate narrative needs to be provided,” recognising the richness and diversity of the Down’s syndrome community across the UK.
Parents under pressure to terminate pregnancies
Stacey isn’t the first mother to express concern over the negative advice given to her following a prenatal diagnosis of Down’s syndrome.
A recent report revealed that pregnant mothers who refuse to abort their children with Down’s syndrome are being pressured by some medical professionals to change their decision.
One mother, whose child is now three-years-old, said medical professionals told her they could leave her baby with Down’s syndrome to die if it was struggling after birth.
Another mum told how even at 38 weeks pregnant she was being offered an abortion.
Time for positive conversations about Down’s syndrome
Picking up on these concerns, Rachel Maskell encouraged the present Minister for Health, Helen Whately, to “go away and look again at the conversations that are had with parents who are diagnosed in pregnancy with somebody with Down’s syndrome and see how we can change that conversation, so that people can understand the positivity of bringing up a child and raising someone into adulthood with Down’s syndrome?”
In response, the Health Minister said: “it is absolutely the case that if, during pregnancy, any abnormality is detected or suspected there should at no stage be any bias towards abortion.”
Concluding the short debate, she added: “It is crucial that we should celebrate the achievements and contributions of those with Down’s syndrome to our society, so we have been and are taking action to support those with disabilities, including Down’s syndrome, but I believe that we can always do more and go further. So I say, let’s do that. Let’s do more and go further to support people with Down’s syndrome to achieve their dreams.”
Earlier this month, Dr Lisa Cameron launched an Early Day Motion celebrating the contribution people with Down’s syndrome bring to communities, families, workplaces and society at large.
Scale of Down’s syndrome abortions
There were 3,183 disability selective abortions across England & Wales in 2019, with 656 of those occurring following a prenatal diagnosis of Down’s syndrome.
However, the figures are likely to be much higher.
In a 2013 review on disability-selective abortions, it was revealed 886 babies were aborted for Down’s syndrome in England and Wales in 2010, but only 482 of these were reported in official Department of Health records.
The underreporting was confirmed in 2014 in a Department of Health review.
There has also been an increase in the number of abortions of babies prenatally diagnosed with Down’s syndrome since the introduction of new prenatal screening tests.
Figures published last year show that the number of babies born with Down’s syndrome in the UK has dropped by 30% in NHS hospitals that have introduced the new non-invasive prenatal tests.
The figures prompted Down’s syndrome advocates to ask the Government to halt the roll-out of the new tests and undertake an inquiry into the impact that the tests are having on the birth numbers of babies with Down’s syndrome.
However, their pleas appear to have fallen on deaf ears, as the Government recently announced that it will be proceeding with the procurement and rollout of a nationwide prenatal testing scheme for Down’s syndrome – something which will likely lead to an increase of babies with the condition being aborted.
‘Screening out’ babies with Down’s syndrome seen as ‘cash cow’
Earlier this year a spokesperson for a Chinese biotech firm declared “screening out” babies with Down’s syndrome is a “cash cow” funding the growth of the whole business.
The admission came from a spokesperson for BGI Group – a Chinese genetics conglomerate whose main business is offering non-invasive prenatal tests, primarily used to diagnose Down’s syndrome.
In a segment from an Aljazeera documentary titled Genesis 2.0, the spokesperson gestures towards a digital map of the world and says: “You can see clearly, especially for Down’s syndrome, we have nearly two million samples all over the world. This part is, what we call, BGI’s cash cow, making money to support the growth of the whole group.”
Dismissing a query over potential ethical concerns, she coldly adds: “…with the use of our technology, we could avoid the birth of birth defect, like a Down’s syndrome birth, a Down’s syndrome child, we can screen them out, we can avoid the birth of them.”
Currently in England, Scotland and Wales, the law singles out babies with disabilities such as cleft lip and club foot and Down’s syndrome and allows terminations right up to the point of birth. However, there is a 24-week time limit for most abortions that are carried out when a baby does not have a disability.
Heidi Carter, a 25-year-old woman with Down’s syndrome, and Máire Lea-Wilson, whose sixteen-month-old son Aidan also has the condition, both believe this is “deeply offensive” and have joined forces to challenge the law.