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Hospital’s youngest surviving premature baby now home

A hospital’s youngest premature baby who was born more than four months early has been allowed to go home.

Lilly Rae was born on 9 December at just 22 weeks and two days gestation at the Norfolk and Norwich University Hospital.

But despite weighing in at just over 1lb (511g) when she was born, about the same as a bag of sugar, Lily Rae proved to be a fighter.

Lilly was born with a beating heart, but struggled to breathe and move.

She was immediately put onto a ventilator, which she stayed on for seven weeks.

During her stay in hospital, Lilly suffered a bleed on the brain, underwent major surgery on a distended intestine and had to be put on a course of antibiotics to treat a series of life-threatening infections.

Then the coronavirus lockdown meant her mother Tayla Menear could only visit her daughter for two hours each day, while father Shane had to stay at home.

Thankfully though, following care from staff in the Neonatal Intensive Care Unit at the Norfolk and Norwich Hospital, Lilly has grown stronger every day.

And last week, on Tuesday morning, Tayla and Shane had a call from Lilly’s neonatal nurse to say she could be discharged home that day.

Lilly can now begin her next chapter of life at home with her mother and father.

Having been born at just 22 weeks and 2 days, she’s the youngest surviving premature baby that the hospital has ever looked after.

Leaving the ward last week, Tayla said: “I cannot believe this day has come. We never dared hope that this could happen.

“I still don’t think I will believe it until Lilly is tucked up in her Moses basket at home with me and Shane.”

Specialist neonatal outreach nurses will continue to monitor her progress with regular visits to see her at home.

Consultant neonatologist Dr Priya Muthukumar said she is “reasonably optimistic” for Lilly because “her brain scans while in the neonatal unit have been reassuring and she has made very encouraging progress so far.”

Taylar said staff at the unit had been “incredible”.

Speaking about her experience she added: “For the first few months of Lilly’s life no-one knew if we would ever reach the point of going home as a family.

“I have since come across other cases and now want people to know if they go into labour at 22 weeks not to feel hopeless. There is always a chance.”

Last year, it was revealed that the survival rate for extremely premature babies has doubled over the past decade, prompting new guidance allowing doctors to try to save babies born as early as 22 weeks into a pregnancy.

Additionally, a recent study has revealed the majority of premature babies grow up to be healthy adults without any major health problems.

Sadly, it is currently legal in Great Britain to abort unborn babies up to 24 weeks, or up to birth if doctors believe the baby will be born with a disability.

In 2018, the latest year with published data, 845 live births were recorded in England of babies with a gestational age of less than 24 weeks, according to the Office for National Statistics

A spokesperson for Right To Life UK, Catherine Robinson said:

“It has been over a decade since abortion time limits were last debated fully in Parliament, in 2008. Since then the survival rate for premature babies has doubled.

“Our current abortion time limit, at 24 weeks, is way out of line with medical breakthroughs and the rest of Europe where the most common abortion time limit is 12 weeks, making time limits an issue Parliament should urgently revisit.”

“Additionally, independent polling from ComRes shows that 70% of women in the UK want to see the time limit for abortion reduced to 20 weeks or below.”

Help stop abortion up to birth for babies with disabilities including Down's syndrome & club foot

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Dear reader

In 2020, the UK Government imposed an extreme abortion regime on Northern Ireland, which included a provision that legalised abortion right up to birth for disabilties including Down’s syndrome, cleft lip and club foot.

A new Bill has been launched at the Northern Ireland assembly that will remove the current provision that allows abortion for ‘severe fetal impairment’.

It is under these grounds in the regulations that babies with disabilities including Down’s syndrome, cleft lip and club foot can currently be singled out for abortion in Northern Ireland because of their disability and can be aborted right up to birth.

Before the new abortion regime was imposed on Northern Ireland in 2020, disability-selective abortion for conditions such as Down’s syndrome, cleft lip and club foot was not legal and there was a culture of welcoming and supporting people with these disabilities rather than eliminating them.

This is reflected directly in the latest figures (2016) from the Department of Health in Northern Ireland, which show that while there were 52 children born with Down’s syndrome in Northern Ireland, in the same year only 1 child from Northern Ireland with Down’s syndrome was aborted in England and Wales. 

This contrasts with the situation in the rest of the United Kingdom where disability-selective abortion has been legal since 1967.

The latest available figures show that 90% of children diagnosed with Down’s syndrome before birth are aborted in England and Wales.

We are, therefore, asking people like you to take 30 seconds of your time and add your support to the campaign to stop abortion up to birth for disabilities including Down’s syndrome, cleft lip and club foot in Northern Ireland.

If you live in Northern Ireland: 
Ask your MLAs to vote to stop abortion up to birth for disabilities including Down’s syndrome, cleft lip and club foot:

If you live outside Northern Ireland: 
Show your support by signing this petition in support of the Bill:

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Help stop abortion up to birth for babies with disabilities including Down's syndrome & club foot

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