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I wrote this with my eyes — don’t tell me there’s no hope

hen I heard of a move to update the law on assisted dying, I intuitively supported it; the intentions appeared so obviously reasonable, compassionate and humane. And I’m a scientist. So I set about researching whether it’s possible to ensure informed choice without pressure. I focused on motor neurone disease (MND), sometimes called “the cruellest disease” and often used as justification for assisted suicide.

I have late-stage MND. Since 2017 doctors have agreed I might die within six months. Now, I’m almost completely paralysed.

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